Disability rights advocate Sophie Morgan has expressed disapproval of Cat Deeley’s choice of words while discussing Jesy Nelson’s twins, who have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1. During a recent episode of This Morning, Cat suggested that “disabled children can lead normal lives” if SMA screening at birth, as advocated by Jesy, were implemented. In response, Sophie, who became paralyzed after a car accident, shared a post from disabled Guardian writer Frances Ryan, emphasizing that the phrase “could have lived normal lives” was inappropriate.
Frances Ryan’s post highlighted that while disabled children can pursue careers and relationships, they often encounter obstacles and physical challenges. The importance of having disabled individuals involved in media discussions on disability issues was underscored, with Sophie emphasizing the need for disabled representation behind the camera to ensure nuanced conversations.
Jesy appeared on This Morning to raise awareness about the lack of SMA testing at birth in the UK, a practice adopted by over 40 other countries. Cat noted that the test is available in 43 countries globally and has been accessible in the United States since 2023. Jesy pointed out the minimal cost of the test, at 36p, and emphasized the significance of early diagnosis and treatment for children with SMA.
Parents of children affected by SMA praised Jesy’s candid discussions about the condition. One parent, Katie Hughes, expressed shock at the low cost of the test that could have detected her son’s condition earlier, emphasizing the life-changing impact it could have had. SMA is a condition that causes progressive muscle weakness, leading to challenges in mobility and basic motor functions.
Jesy disclosed on This Morning that her daughters may never walk or support their own heads due to the effects of SMA. Her advocacy for SMA testing at birth aims to improve early intervention and support for affected children.